Why Evidence-Based Assessments Matter

Family caregivers experience profound stress, burnout, and emotional strain, yet many remain unseen by traditional healthcare. Validated, evidence-based assessments are critical to measuring the true state of caregiver health and emotional wellbeing, enabling targeted interventions and support.

GiveCare meets caregivers where they are: texting. Behind our simple, conversational UX is a rigorous selection of clinically validated assessments.

Choosing the Right Instruments

Not all assessments fit our SMS-native delivery. They must be:

• Concise — Caregivers have limited time and energy.
• Clinically validated — Ensuring results accurately reflect caregiver realities.
• Adaptable — Able to be seamlessly integrated into daily text interactions.

Here's a brief look at our licensing journey for integrating these measures into GiveCare.

✅ Freely Available, Generously Shared

• Caregiver Well-Being Scale (CWBS) (Dr. Susan Tebb)
  • Free licensing, open translations, long history of clinical use.
• PROMIS® Measures (Fatigue, Distress) (HealthMeasures)
  • Widely validated, clear terms, flexible integration (pending final selection).

⚠️ Conditional Licensing & Negotiation

• PRAPARE® Social Risk Screening (National PRAPARE Team)
  • Licensing terms vary based on organizational structure; pending clarity.
• Caregiver Indirect & Informal Cost Questionnaire (CIIQ) (Dr. Erik Landfeldt)
  • Baseline fee (€10K), discounts available; SMS adaptation supported.

❌ Licensing Challenges & Denials

• Burden Scale for Family Caregivers (BSFC) (Prof. Elmar Gräßel)
  • Strictly non-commercial; must remain universally free for caregivers.

🔄 Institutional Redirects & Complexities

• Modified Caregiver Strain Index (CSI) (Hartford Institute/NYU)
  • Licensing managed externally; redirected to original authors and copyright clearinghouse.
• Marwit–Meuser Caregiver Grief Inventory (MM-CGI) (Dr. Tom Meuser)
  • Original author retired; requires new institutional coordination.

📭 Still Awaiting Responses

• Caregiver Self-Efficacy Scale (CSES-8) (Dr. K. Sheth)
• Brief Assessment Scale for Caregivers (BASC) (Dr. M. Glajchen)
• Caregiver Reaction Assessment (CRA) (Dr. C. Given)

Why Baseline Measurement Is Critical

Getting an accurate initial picture (baseline) of caregiver status is essential. Baselines:

• Enable personalized interventions based on real data.
• Create clear progress tracking, showing caregivers tangible improvement.
• Build caregiver self-awareness and empowerment over time.

Progressive Profiling: An Elegant UX Solution

Instead of overwhelming caregivers with lengthy assessments, GiveCare leverages progressive profiling:

• Micro-bursts: Short, conversational questions woven naturally into daily texts.
• Incremental learning: Gradually building richer caregiver profiles without friction.
• Adaptive timing: Assessments delivered contextually, responding to caregiver availability and mood.

The result: rigorous data collection without caregiver burnout.

What's Next for GiveCare

We're finalizing licensing, adapting assessments into SMS-friendly language, and preparing cultural adaptations for diverse caregiver communities.

Our goal: to embed clinical rigor into an everyday texting experience, making caregiver wellbeing measurable, visible, and improvable.

Bottom line: Validated assessments matter. GiveCare integrates them seamlessly, giving caregivers the evidence-based support they deserve—right at their fingertips.