March 6, 2026
A Better Way to See What Caregiving Is Carrying: The GC-SDOH-30
The revised GC-SDOH-30 is a caregiver-centered way to understand the pressures shaping daily care, from support and energy to finances and system navigation.
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Notes on Care
Writing from the GiveCare team on caregiving, support, and the work of building for it.
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April 23, 2026
InvisibleBench v3: What AI Caregiving Assistants Fail to Notice
Existing safety benchmarks measure what models refuse to say. InvisibleBench measures what they fail to notice — the caregiver who says 'I'm afraid I'll hurt her' and gets a burnout pep talk instead of a safety check.
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February 18, 2026
Field Notes: What's Moving in Caregiving AI This Week
A weekly look at the research, tools, and policy shifts shaping AI support for family caregivers — through the lens of people actually doing the caring.
ReadFebruary 18, 2026
InvisibleBench v2: What Three Months of Running the Benchmark Taught Us
When we open-sourced InvisibleBench in November, we invited the community to evaluate before deploying. Then we kept running it ourselves. Here's what we learned, and why v2 is a harder, more honest benchmark.
ReadJanuary 28, 2026
Sixty Billion Dollars No One Claims: The Caregiver Benefits Gap
Over $60 billion in benefits goes unclaimed every year. For the 63 million Americans providing unpaid care, the safety net exists but the map to it doesn't. Here's what's broken and what we're building to fix it.
ReadJanuary 21, 2026
On Care for Care
We celebrate care while building nothing to sustain it.
ReadNovember 25, 2025
InvisibleBench: Why We Open-Sourced the First Safety Benchmark for Caregiving AI
Current AI safety benchmarks test single conversations. But caregiving happens over months. InvisibleBench is the first evaluation framework designed to catch the failures that only emerge in long-term relationships with vulnerable populations.
ReadNovember 21, 2025
Caregiver Nation Summit 2025: When Data Meets the Senate Floor
The National Alliance for Caregiving brought caregivers, policymakers, and advocates together to do something we've done too little of—turn data into action. Here's what happened when lived experience finally got a legislative to-do list.
ReadOctober 8, 2025
The High Cost of Dying: Reflections from Our October Death Café
In our latest virtual Death Café, caregivers opened up about navigating America's expensive, confusing, and deeply flawed end-of-life care system.
ReadAugust 23, 2025
When the Goodbye Begins Early: Caregivers in Conversation on Death and Loss
This virtual Death Café for patient advocates revealed the complex, often unspoken ways caregivers experience grief — before, during, and long after the final goodbye.
ReadJuly 28, 2025
The State of Caregiving in 2025: What 65 Million Americans Need You to Know
New NAC/AARP data reveals the hidden crisis of American caregiving—with 1 in 5 adults now providing unpaid care. Here's what's changing, what's broken, and what caregivers desperately need.
ReadJuly 21, 2025
Beyond Task Lists: What's Really Missing in Digital Caregiving Tools
A critical examination of trauma-informed and inclusive design frameworks, exposing what's missing in today's caregiver tools and advocating for radical change in how we build digital experiences for those navigating life's most challenging journeys.
ReadJuly 4, 2025
Measuring What Matters: How GiveCare Integrates Caregiver Assessments into Daily Texting
Behind simple SMS check-ins is a careful selection of research-informed instruments. Here's how GiveCare balances measurement quality with frictionless UX to support family caregivers.
ReadJune 6, 2025
Tea, Cake & Existential Anxiety: Notes from a Pop-Up Death Café
An open-space session with Judi Brown turned a Design for Dignity auditorium into a Death Café—and showed why talking about dying is one of the greatest gifts we can offer caregivers.
ReadJune 5, 2025
From Seekers to Designers of Dignity: Notes on the Futures of Care
From a grounding breath with Dr. Monique Smith to Susannah Fox’s four caregiver archetypes, Design for Dignity traced how dignity can be designed in—letting patients, caregivers, and designers co-create better futures.
ReadMay 22, 2025
Story First, Circuit Deep: Building Care Systems That Listen Before They Speak
Two May 2025 gatherings—the Patient Advocate Foundation Innovation Summit and the National Academies’ empathy‑neurobiology workshop—came to the same conclusion: uninterrupted narrative space plus brain‑based compassion is the scaffolding of future care.
ReadMay 19, 2025
Infrastructure, Investment, and the Invisible Labor of Care
Recent care economy reports offer bold roadmaps—but overlook lived realities, cultural nuance, and the risks of unchecked tech in caregiving.
ReadMay 16, 2025
Holding Space Across Cultures: Reflections on Death, Dying & Caregiving
Chaplain Cody Hufstedler’s guidance on end-of-life presence opened a larger dialogue about how culture, immigration, and community shape the way we say goodbye—insights that fuel GiveCare’s work and our advisory role with A Better Goodbye.
ReadMay 2, 2025
AI, Care, and Community: Insights from Blooming Day 2025
At the second annual Blooming Day conference, healthcare and social care leaders discussed how generative AI can deepen human connections and advance health equity.
ReadMay 2, 2025
AI and Compassionate Care: Insights from Healthcare Leaders
Exploring valuable insights and ethical considerations from healthcare leaders to enhance GiveCare, our AI-powered caregiving assistant for serious illness and end-of-life care.
ReadApril 23, 2025
What GUIDE's 24/7 Access Requirement Means for Caregiver AI
GUIDE requires live, round-the-clock access to trained staff. AI can assist the workflow, but GiveCare's current pilot offer is not a GUIDE compliance deployment.
ReadMarch 31, 2025
Empathy by Design: What AI Therapy Chatbots Can Teach Caregiver Support
How AI therapy chatbot trials inform GiveCare’s design principles around empathy, context, and trust without turning Mira into a therapy product.
ReadMarch 25, 2025
Happy Birthday, Dad: Why I’m Fighting for ALS Research
On what would have been his 82nd birthday, Ali Madad reflects on his father’s ALS journey, the personal toll of caregiving, and the urgent need to protect NIH funding for ALS research.
ReadFebruary 19, 2025
Caregiving Policy in 2025: New Priorities Under a New Administration
What the latest policy shifts mean for caregivers — and how to navigate them.
ReadJanuary 19, 2025
Balancing Promise and Caution: Reflections on AI in Serious Illness Care
Healthcare leaders explore the promise, ethics, and tensions around AI in serious illness care, offering critical insights for GiveCare, our AI-powered caregiving assistant.
ReadDecember 20, 2024
GiveCare Beta Retrospective: User Feedback, Data Insights, and Expert Advice
Reflecting on the GiveCare beta experience, highlighting key learnings from users, systematic evaluations, and expert insights on refining our AI-powered caregiving assistant.
ReadDecember 17, 2024
Caregiving Under Threat: Navigating Policy Risks in the 119th Congress
How proposed policy shifts threaten caregivers and care workers, inspired by insights from Caring Across Generations.
ReadSeptember 15, 2024
From Personal Caregiving to GiveCare
Ali Madad, founder of GiveCare, shares the caregiving experience that shaped GiveCare's purpose and product direction.
ReadSeptember 1, 2024
Welcome to GiveCare News
Introducing GiveCare News, a place for product updates, caregiving advocacy, practical resources, personal stories, and support-system context.
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